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Young People Get Shingles Too

A few years ago, in my mid-30s, I broke out in a rash that stretched horizontally across my torso, from the middle of my back to the front of my ribcage. At first, I thought it might be from wearing my bra too many days in a row without washing it. Weirdly, I also felt like I was coming down with the flu. Overnight, the rash got more prominent, and my flu-like symptoms got worse, so I went to see my primary care doctor right away.

In her office, I lifted my shirt and turned. Immediately and definitively, she told me I had shingles. What? “I thought only senior citizens got shingles,” I said.

Like many adults on the south side of middle age, I had barely even heard of the disease at the time of my diagnosis. Shingles results in a painful red rash that breaks out in a band adjacent to the spine; it can also cause an upset stomach, fever and chills. A few telltale signs make it easily recognizable: The rash extends from the spine but does not cross the midline of the body, and it will affect one side of your torso but not the other.

About 1 in 3 people will get sick with shingles in their lifetime. It’s caused by the same virus behind chickenpox, varicella zoster. The virus remains dormant in the body following a case of chickenpox, prompting a shingles outbreak later in life.

If you’ve never had chickenpox, exposure to someone with shingles can give you a case of chickenpox.

For years, the rate of shingles in all age groups has been on the rise, though experts don’t know why. While shingles is most common among adults older than 50, my doctor explained, she’d been seeing more young people with the illness. After writing me a prescription for the strong antiviral medication that made me better within the week, my doctor asked me if I was under any unusual stress.

In fact, I was. In addition to stressful family events, I was under pressure at work. I was also managing the physical strain of training for a half-marathon. Stress can interfere with your immune system, so it’s one of the things that makes contracting a case of shingles more likely at any age. Some forms of cancers, HIV and certain medications can depress the immune system too, increasing the risk of shingles.

“The youngest patient I’ve had with shingles was 8 years old, and I think stress played a role,” said Erica Swegler, a family doctor in Austin, Texas. The boy was feeling the pressure of looming standardized testing at school. “He was so worried about the tests,” she said, “that he broke out in shingles.”

While the vast majority of shingles patients are still older adults, the number of cases in patients under 50 is rising. One problem with younger adults and shingles is that they don’t know which symptoms to look out for, primarily because conventional wisdom says they aren’t vulnerable to the disease. As a result, they might delay making a doctor’s appointment, a decision that Swegler says can result in months or even years of pain.

“With prompt treatment, we can mitigate how severe the pain will get and how long it will last,” Swegler said. “If you get treated within 48 to 72 hours of the rash breaking out, you will end up with a milder case of the disease, and you can get better within the week.”

That’s what happened to me, but my sister Jill, 39, who endured a case of shingles earlier this year, wasn’t so lucky. “I waited maybe three weeks or a month before I saw the doctor,” she told me. Even after she was diagnosed and treated, she had two months of pain so intense she had to lie down on the floor of her office a couple times a day. Ten months after the rash first appeared, she still has frequent pain that she describes as merely troublesome. Long-term pain from shingles is called post-herpetic neuralgia.

“Some people have ongoing sensitivity that makes things painful that shouldn’t be, like wearing clothes,” according to Swegler.

The first vaccine to protect against shingles came out in 2006. This vaccine was an attenuated vaccine, meaning that it contains a harmless, much less potent version of the virus, one that doesn’t make you sick but will enhance your defenses against the disease. “That vaccine, averaged across all age groups, was only about 50 percent effective,” Swegler said.

Last fall, a new vaccine called Shingrix, which doesn’t contain the virus, became available. Vaccination with Shingrix is 90 percent effective at preventing the disease and requires two shots anywhere from two to six months apart. Due to its popularity, there’s a shortage of the drug. Swegler says there’s currently a wait list for the new vaccine at her practice.

The Centers for Disease Control and Prevention recommends the vaccine for all healthy adults older than 50. If you’re under 50 and concerned about getting shingles, you can still ask your doctor about getting Shingrix. Because it won’t be covered by your insurance, it will cost roughly $400 — and you’ll probably need to wait until more of the vaccine becomes available.

According to Swegler, 1 in 5 people who get shingles will get it a second time. Like anyone who has lived through the burning pain and unsightly rash that comes with the disease, I do not want to be one of them. So I’ve considered talking to my own doctor about getting the vaccine when it becomes available, despite the staggering price tag. Swegler told me that because I’ve had shingles in the last few years, I can expect to have more resistance to the virus than I otherwise might for at least a few more years. In the meantime, I’m taking stress management seriously.

A smart strategy for those under 50 who want to avoid the long-term nerve pain that often accompanies shingles is to know the symptoms of the virus and see your primary care doctor immediately if you spot them. In other words, if an unexplained band-like rash breaks out next to your spine, and appears on only one side of your body, don’t wait a few months (or even a few weeks) to get it checked out.

Show Comments (9)
  1. Joni

    I’m now 36 and over the past 15 years have had shingles 9 separate times. Every time on my face and neck. Almost every time I had to fight to get the meds because in the drs minds I was far to young to get Shingles despite my knowing full well the pain of Shingles and the symptoms. I feel the pain of anyone who has shingles and would get the vaccine in a heart beat if it was available in Canada for anyone under 60. No matter the cost

  2. J.L.

    I got shingles in 7th grade (back in 1982) and the only treatment available at that time was to get sprayed with Solarcaine to alleviate some of the discomfort. That was a terrible 3 weeks! I’ve asked about the shingles vaccine, but I’ve been told that my insurance won’t cover it because I’m too young, even though I’ve had shingles before.

  3. Pamela

    I had Shingles when I was 7 or 8. I believe I was in 1st or 2nd grade.(about 55 years ago). Our family doctor immediately knew what it was. I had had chicken pox as a baby when my other sisters got it. I remember our doc giving me a shot every day. I don’t know what it was. The right side of my face, down my nose, and on my eyelid and the corner of my eye were covered. Terrible itching and horrible pain!!!!!!!! I still have scars between my eyes and on my nose. The doc was very worried about my eyesight. I did have to get glasses after I healed. Z

  4. kran

    i am currently in the throes of the shingles; i’m 44. it’s on my head, and i had no idea there was a rash until several days after the shooting pains started. what finally alerted me to the seriousness was the pain and swelling of my lymph nodes, along with the achy numbness in my face/jaw, chest, and left arm. my head and neck pain is intense, certainly the worst head pain i have had (i have a history of migraines & concussions). my nervous system is obviously compromised, as i have become tremendously clumsy.

    i awoke xmas morning when i was 8 with the chickenpox. my sister was 4 months old and could not avoid getting the chixpox as well, though it seemed to be a milder case. a year and a half later (before she was 2), she got the shingles on her shoulder & neck.
    speaking to doctors to this day, that is the earliest case of shingles they have ever heard of, by far. unfortunately, her illness developed into scarletina and encephalitis; her life was on the line for a while, but she survived, though she lost her hearing as a result.

    i’m glad my kids have had the chixpox vaccine, and i can’t wait until i can get the shingles vaccine. i wish this on no one..

  5. Chelsea W.

    I am only 24 years old. At the beginning of January 2019 I had my first out break of shingles. I was a small patch on my tummy. My doctor immediately knew what it was, i was not given medication. 2 month after i had a flare up on the top of my left thigh about 6 inches below where i had the last flare up on my tummy. this one was incredibly painful as well! In July 2019, i had my 3rd break out AGAIN on my stomach. My doctor prescribed valacyclovir antiviral medication to help with the pain and the length of the break out. They usually last from 1 to 2 weeks, And the pain level is a 7 at best. Now today I have my 4th break out in the same spot on my upper thigh, I’m starting the antiviral again.. I want the vaccine but I’m way too young. I hope this doesn’t last my entire life and they come out with a vaccine for younger folks.

  6. Kraig

    I get a breakout of shingles between every 2-6 months. I first broke out when i was 12 years old. Since then it has been reoccurring nightmare. I am 31 now and have broke out over 50 times. As I am getting old it is becoming more frequent. So I fully agree and through personal experience know you can break out with shingles at a younger age.

  7. Tina Kirby

    I was 11 years old back in 1977. I got the flu shot, and turned around and got a bad case of shingles. Back then my Dr was baffled. They only had an ointment to put on the blisters and a light bandage. I have a scar on my back from it, and it is painful to the touch this day. By the way, I have never had chicken pox yet. Shingles was very painful for me.

    1. RP

      I had infant shingles, my mother said they had to bring specialist in because it was so rare for me to have had shingles at a young age of 6-7 months old.

      I do believe i was one of the youngest people to have had this virus.

  8. Tamara Thompson

    I had chicken pox at 4 then developed shingles at 5 (right arm, up into my pit and half way across my chest and corresponding back). When I turned 45, I got a shingles outbreak on the left side of my face (in my nose, mouth, ears, hair, checks, and around my eye) that has caused nerve damage and when ever I’m stressed, I get the pain and itch on that side of my face. I’m currently 51 and got another outbreak on my left neck….., this sucks! I was told by an ER Doctor that there are only 5 people at the age of 5 and younger that have been diagnosed with shingles – RP, you and I may be 2 of those.

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